On Wednesday Barbara and I spent 8 hours at Dana-Farber (DF). During our visit, I got an EKG and an IVIG infusion.
We were supposed to meet with the oncologist at 2:45. We met at 6:45.The oncologist is recommending yet another clinical trial. They have not yet told me too much about it - like when it will start or how often I will get treatments. There are several "cohorts" in which I might end up some requiring two visits per week to Dana Farber. We will see what happens.
Given that my M-Spike numbers are pretty bad and getting worse, I am anxious to get started.
We have gotten used to these long visits to Dana Farber with lots of waiting. We spend the time on our phones and I bring a computer and sometimes watch Netflix. However, first thing on Wednesday, my glasses broke. One lens fell out of the frame and I was not looking forward to entertaining myself with one eye closed. But wait !!! I'm and engineer. I should be able to fix this, right?
For those of you who sometimes wonder if I am a "geek", you will now know for sure. Here is how I "fixed" the glasses:
Yup - that's right. I walked around Dana Farber wearing glasses that had been "fixed" with a rubber band. Surprisingly, I was able to see fairly well with the rubber band in front of that eye.
I also had a bit of luck last week. I will leave it to you to decide if it was good luck or bad luck.
Several weeks ago, while visiting Lake Region General Hospital (I don't limit my business to only Dana Farber), I noticed a "ghoul" in front of the gift shop. Knowing that Barbara likes Halloween decorations, I invested a dollar in a raffle ticket to win the ghoul. Perhaps I was the only one who entered, but I won. The woman at the shop asked me to get it as soon as possible because she was very sick of looking at it. Apparently, they had forced her to move it into the shop because it was reminding hospital patrons of why they were at the hospital; it looked too much like the "grim reaper". But Barbara loved it. We brought it to Fox Hill Village to add to their decorations and set it up outside the dining room.
Here is a photo of me with the ghoul. I am the one on the right.
So, that is the report. I will send more as I learn more.
We were supposed to meet with the oncologist at 2:45. We met at 6:45.The oncologist is recommending yet another clinical trial. They have not yet told me too much about it - like when it will start or how often I will get treatments. There are several "cohorts" in which I might end up some requiring two visits per week to Dana Farber. We will see what happens.
Given that my M-Spike numbers are pretty bad and getting worse, I am anxious to get started.
For those of you who sometimes wonder if I am a "geek", you will now know for sure. Here is how I "fixed" the glasses:
Yup - that's right. I walked around Dana Farber wearing glasses that had been "fixed" with a rubber band. Surprisingly, I was able to see fairly well with the rubber band in front of that eye.
I also had a bit of luck last week. I will leave it to you to decide if it was good luck or bad luck.
Several weeks ago, while visiting Lake Region General Hospital (I don't limit my business to only Dana Farber), I noticed a "ghoul" in front of the gift shop. Knowing that Barbara likes Halloween decorations, I invested a dollar in a raffle ticket to win the ghoul. Perhaps I was the only one who entered, but I won. The woman at the shop asked me to get it as soon as possible because she was very sick of looking at it. Apparently, they had forced her to move it into the shop because it was reminding hospital patrons of why they were at the hospital; it looked too much like the "grim reaper". But Barbara loved it. We brought it to Fox Hill Village to add to their decorations and set it up outside the dining room.
So, that is the report. I will send more as I learn more.
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